Participant Rights

KNOW THE PROTECTIONS THAT SUPPORT INFORMED PARTICIPATION.

Research participation should include clear information, opportunities to ask questions, and defined protections throughout the study process.

Voluntary participation

Joining a clinical trial is generally voluntary. Choosing not to participate should not prevent you from discussing other available care options with your healthcare team.

Informed consent

You should receive information about the study in a form you can understand and have an opportunity to ask questions before deciding whether to participate.

Questions and updates

Participants can ask questions about study procedures, scheduling, risks, new findings, and other information that may affect continued participation.

Leaving a study

Participants can generally withdraw from a study. Ask the research team how withdrawal works and whether any safety follow-up is recommended.

Independent oversight

Many studies are reviewed by an Institutional Review Board or ethics committee. These groups review study plans with participant welfare and ethical requirements in mind.

Medical concerns

If you experience symptoms or concerns during a trial, follow the study team's instructions for contacting the appropriate research or medical professional.